On this holiday weekend, something extraordinary happened with our Tess. I wish you coulda seen it.
Tess's pain threshold is something else. We think it could be part of her genetic disease, Hao-Fountain Syndrome.
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Are you on our Discord server RARE & RELATABLE? It's a 24/7 chatroom for people dealing with rare diseases and other types of disabilities. We even have a closed channel for Hao-Fountain / USP7 families. Click here to join: discord.gg/7UFUPAFs8K