Life with this disease can be pretty overwhelming for families. Especially on that day you first get your diagnosis. If that's you, and this is that day, you've come to the right place.
This episode is a great starting point if you or someone you love has just been diagnosed with Hao-Fountain Syndrome or USP7.
Stronger Every Day is sponsored by The Disorder Channel. It's dedicated to rare diseases and other types of disabilities. Over 100 film and video titles, including a few video versions of this podcast. Available for free right now on Roku and Amazon Fire TV. The Disorder Channel. The most rare stories in the world. https://www.thedisordercollection.com/
If you or someone in your family has just been diagnosed with Hao-Fountain Syndrome or USP7, please join our private groups on Facebook or Discord. Click below and then request to join the private group.
Facebook: https://www.facebook.com/groups/969399453182041/
Discord: discord.gg/7UFUPAFs8K
Check out my YouTube Channel: https://www.youtube.com/bobigelow
Learn more about our life with Tess on my blog: http://www.portlandrootsmedia.com/stronger-every-day-blog-1