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Stronger Every Day

You're a parent or caretaker of someone with disabilities. It's crazy hard, but you can handle all the challenges that come your way, and Bo Bigelow will show you how.  Bo Bigelow is the father and primary caretaker of Tess, age 14, who has a rare genetic disorder that causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Whether speaking up for Tess's education, navigating appointments and insurance coverage, or simply making Tess seen and known, he's developed tons of actionable tips to help you crush it and get it all done, without losing your own sanity and identity.   Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.
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All Episodes
Archives
Now displaying: 2023
Dec 26, 2023

Our sweet Tess returns to the emergency room, for the THIRD time in a month.

Dec 19, 2023

Our sweet Tess returns to the emergency room, for the second time in a month. The latest in a long line of medical mysteries involving our girl.

Dec 13, 2023

What's a word you'd pretty much never use to describe Tess?

Dec 6, 2023

You're familiar with Sam-I-Am, probably. Tess definitely is. But there's a new book on our shelf that has become her favorite.

Nov 28, 2023

We're holding an event next year and we're inviting some of the greatest minds in science. Think Real Genius meets Midnight Madness.

Nov 21, 2023
An early morning scare with Tess. 
Nov 15, 2023

How do people with autism see the world? And what can we do to help them soothe themselves when they're in distress or discomfort? 

Nov 8, 2023

There's another candle on the cake. Let's celebrate with our T-Bird, as we do each November.

Nov 1, 2023

It's been a difficult week here in Maine. Tess may not grasp what's happened, but she knows something's different. 

Oct 24, 2023

Hitting you with episode three about the meetup in the mountains. My wife and I are in Denver, Colorado for a USP7 conference and it's our mission to get scientists wound up about helping us cure this thing. 

Oct 18, 2023

More about the roundtable in the Rockies. My wife and I are in Denver for a USP7 conference and we're having a sitdown with a bunch of brilliant scientists. 

Oct 10, 2023

Restarting. Resetting. Getting things back on track with our first usp7 conference since 2019. This one had some developments that can only be described as seismic.

Oct 3, 2023
Heading to Denver this week for the first USP7 conference we've attended in four years. I'll give you a little preview of what we're going to be talking about.   
Sep 27, 2023

What if you only had about five words you could use? And you had almost no choice but to use only those five words to get what you wanted?

Sep 19, 2023

Think of our foundation as a car. The car is six years old. It has traveled many many miles and been all over the place. And we have just installed a turbo.

Amber Freed is our foundation's new executive director. You can read her story here.  

Sep 13, 2023

If you're a pro athlete in any sport and you take growth hormone in any form, you're gonna get busted. It's considered doping. But here in our house, we give it to Tess every day. 

Sep 6, 2023

People are always asking me, how can I help you guys in your life with Tess? And honestly, the answer is sorta difficult to formulate. Today I'll explain.

We need to ritualize chronic compassion. Click here to read Daniel's blog post. 

Aug 29, 2023

The fall semester of school is kicking off for Miss Tess today. She's excited, and so am I. It's a new day.

My new band is called UNLESS PROVOKED. We like you. 

Unless Provoked website

Unless Provoked Instagram

Unless Provoked Facebook

Unless Provoked YouTube

Get your t-shirt here.

Aug 22, 2023

Tess has come a long way through physical therapy. Learning to walk. Loosening her upper body and reaching upwards over time. Going up and down stairs. But there's one thing she just won't do.

Aug 15, 2023

Tess is out of school for the summer. Let's go do something fun with our girl.

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7

Aug 8, 2023

It is our long-awaited week off in the summer. It's our turn at the island house we share with my wife's siblings. And just about every moment Tess is trying to tell us something very specific.

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7

 
Jul 27, 2023

We're concluding our series about travel with our girl. She attends a party, tries to sleep, and at the end of it all gets back in the car.

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7

 
Jul 25, 2023

Over the years, we've learned about what works when we travel with Tess. We're still learning. She shows us new ideas all the time. And this voyage is no exception.

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7

 
Jul 18, 2023

Along the highways and byways, there are quagmires wherever you look. The filthy bathroom in Hampton, New Hampshire. The police speed trap in Chicopee, Mass. And heck, there's an entire stretch of over 130 miles that couldn't be less friendly to our Tess.

Our journey to upstate New York begins. 

Rest stops between Portland, ME and Skaneateles, NY

On this road trip, I'll definitely be playing Eagle Eye in the car. It's a highway travel game I invented. The cost: $0.00. Put down your phone and play too: https://www.portlandrootsmedia.com/eagleeye

New to the show and not sure where to begin? I gotcha. Check out the Top 5 Most Downloaded Episodes Ever.  

My blog about our life with Tess

More information about Hao-Fountain Syndrome or USP7

Jul 11, 2023

It's 448 miles to Syracuse, we got a full tank of gas, half a pack of Larabars, it's dark...and we're wearing sunglasses. Hit it.

What's the difference between a trip and a vacation? And which one will this voyage be? 

On this road trip, I'll definitely be playing Eagle Eye in the car. It's a highway travel game I invented. The cost: $0.00. Put down your phone and play too. https://www.portlandrootsmedia.com/eagleeye 

 

 

 

 

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