This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.

This week, we're away on a ski vacation as a family. Let's check in with Tess.  

This week, we're on pins and needles, waiting for a very special milestone. 

This week, the illness continues, believe it or not. We'll check in on our girl. 

This week, someone in our house is considerably under the weather.

This week, got a few fun stories for ya. Vignettes, if you will.

This week, a nifty tech device gets strapped to Tess's wrist.

This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.

This week, in the backseat of a car in Maine, someone had something to say.

This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these 4 went for Tess and why it matters.

Tess wanted something recently, and she used all her abilities to let me know what it was.

We took Tess on a special outing, somewhere she'd never been before.  

It's that time of year, and we just held our annual Hao-Fountain conference.

Hao-Fountain patients and families:  please SIGN UP for our October 2nd Zoom about MATRIX, where we can help you sign up for Matrix and answer your questions. Sign up here:  https://usp7.salsalabs.org/MatrixSignupandQA 

It's that time of year, and we just held our annual Hao-Fountain conference.

Tess got invited to a birthday party and she was pleased as punch.

Recently Tess had a seizure and went to the ER, so I want to tell you more about it.

Recently Tess had a seizure and went to the ER, so I want to tell you about it. 

Today I'll be telling you the second part of our recent trip to Syracuse.

Today I'll be telling you the first part of our recent trip to Syracuse.

Today I'll be telling you about some locations that Tess enjoys.

Today I'll be telling you about Tess's schedule on a typical day.

I wrote about Tess's special diet on my blog here and made a two-part Stronger Every Day podcast episode you can find here and here.  

Today I'll be sharing about a certain radar that Tess likes to use.